Sufferers of rare cancer speak out: NETs often misdiagnosed
North Bay Nugget | A Day in your Life –
At first, Jackie Raney’s doctor thought she had blood spots in her liver and that she suffered panic attacks. Beryl Lemke’s doctor thought her patient suffered from irritable bowel syndrome.
Margaret Binkley’s daughter suffered through her teen years, the problem resulting in an appendectomy, and more years of uncertainty. But when Beverley Binkley Claxton was diagnosed with carcinoid neuroendocrine tumours (NETs), her reaction was the same as Raney and Lemke.
“What is that?”
“Even most medical people have never heard of it,” Binkley said Wednesday as she, Raney and Lemke manned a table at North Bay and District Hospital to raise awareness of the disease. They are members of the Cardinoid NeuroEndocrine Tumour Society of Canada.
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