Raising awareness of neuroendocrine cancers around the world

NET Cancer Day

November 10

November 8

Get the NETs! Support World NET Cancer Awareness Day on Wednesday

Peter Stothard

by Sir Peter Stothard, Editor of the Times Literary Supplement.

In my inbox today sits a note about World NET Cancer Awareness Day.

It is there because a decade ago I was given no chance to escape one of these nasty little killer NETs, a Neuro Endocrine Tumour that had settled in and around my pancreas.

Read the full article at The Times UK.

November 8

Leading the charge against rare form of cancer

Dufferin County first municipality in Canada to proclaim Nov. 10 Worldwide NET Cancer Awareness Day

When Orangeville resident Beverley Claxton, 33, was first diagnosed with a Neuroendocrine Tumour (NET), also known as carcinoid cancer, in August of 2003, “I called the Canadian Cancer Society and they said, ‘You have what?’”

In fact, during her first medical appointment following diagnosis, doctors were googling for information about NET cancers from the same website Claxton had been visiting.

Click here for full article.

November 6

Shedding light on a rare, life-threatening cancer

(ARA) – Nearly everyone in the U.S. has been affected by cancer in some way; whether you or someone in your immediate family or group of friends has been directly impacted by it, or a colleague or more distant friend or relative who battled or is battling the disease. However, while most people are aware of major cancer types like breast cancer, we cannot forget about the more rare cancers, which pose an increasing number of challenges for detection, diagnosis, prognosis, treatment and technology development given their low incidences.

Click here for full article.

November 5

Breaking News from Canada about Carcinoid and Neuroendocrine Cancer Awareness

For the first time in the history of Canada’s Federal Parliament, a member of the House of Commons has taken the floor to speak about the need for awareness of neuroendocrine cancer. On Tuesday, November 2nd, the Honorable, Dr. Carolyn Bennett, MP, MD, made a Members’ Statement about the first Worldwide NET Cancer Awareness Day during the part of the day’s proceedings allotted to Members’ Statements by individual Members of Parliament.

Read the full article at the Carcinoid Cancer Foundation blog.

November 3

Roseville woman who suffers from rare cancer wants to educate others

Sena Christian | The Press Tribune – Toni Hussain carries around a flash drive containing her medical records with her everywhere she goes.

The Roseville resident has taken her health into her own hands. On that device is an Excel spreadsheet she created with a list of all her previous test results, highlighted to show high and low figures, and trends.

She’s undergone chemotherapy treatment every two weeks for the past eight years. She has developed Type 2 diabetes, for which she takes insulin. She’s on medications that have caused her to gain weight, but she can’t exercise or clean house because she’s too weak. Hussain often gets hives and ends up in the hospital.

Click here for full article.

November 2

Canadian House of Commons Members’ Statement on Worldwide NET Cancer Awareness Day

Carcinoid-Neuroendocrine Tumour Society-Canada (CNETS Canada)
La Société canadienne du cancer carcinoïde Neuroendocrinien. (SCCCNE du Canada)

House of Commons Members’ Statement.


Tuesday November 2nd, 2010.
(Part A)

Speaker: The Honourable Peter Milliken.


Carolyn Bennett

Hon. Carolyn Bennett (St. Paul’s Lib.):

Mr. Speaker,

It is my honour to rise here today to support Worldwide NET Cancer Awareness Day on November 10.
NET—or Neuroendocrine Tumors is the umbrella term for a group of unusual, slow-growing cancers, which develop from cells in the diffuse endocrine system. They are found most often in the lung or gastrointestinal system but can be found in other parts of the body.

Often misdiagnosed—up to 90% of the time—as another kind of ailment, NET cancer is now twice as common as pancreatic cancer. That makes it the fastest growing cancer community worldwide. I rise here today, Mr. Speaker with the hope that these words will spark awareness of this often under-reported and under-served and unknown cancer group.

Across our country, there are limited treatment options for Canadians suffering from NET tumours. Health Canada has yet to approve yttrium and lutetium. It is my hope that by making more people aware of this cancer there will be steps taken to invest more resources into helping diagnose, treat and care for NET cancer patients in Canada and around the world.

October 27

Governors of Louisiana and Montana Join Worldwide NET Cancer Awareness Campaign

Governor Bobby Jindal of Louisiana and Governor Brian Schweitzer of Montana have become the 6th and 7th United States governors to pledge their support to the first Worldwide NET Cancer Awareness Day on November 10, 2010Governor Schweitzer wrote, “I am pleased to recognize NET Cancer Day in the State of Montana.  Prevention and early detection are critical in efforts to decrease carcinoid cancer.”

Governor Jindal’s proclamation addresses the need for timely diagnosis and proper treatment so that “NET cancer patients can have significantly improved outcomes and quality of life…

Click here for full article.

October 27

5th United States Governor Supports Global Neuroendocrine Cancer Awareness Campaign

Pat Quinn, Governor of Illinois, has joined governors from Connecticut, Missouri, Mississippi, and Nebraska in support of the 1st Worldwide Neuroendocrine Cancer Awareness Day on November 10, 2010.   With increased awareness both in the healthcare and patient communities, it is hoped there will be an improvement in the availability and quality of diagnosis, treatment and care for NET cancer patients throughout the world.  The World NET Community thanks Governor Quinn for his support.  For more information about the Worldwide NET Cancer Awareness Day, visit www.netcancerday.org.

Click here to read full article.

October 18

Canada’s Dufferin County Council Proclaims Worldwide NET Cancer Awareness Day

The Dufferin County Council in Ontario, Canada, has named November 10th as Worldwide NET Cancer Awareness Day.  This is the first municipal proclamation for the Worldwide NET Cancer Awareness Day in Ontario and in Canada. All members of the council signed the proclamation at the October 14th council meeting held in Orangeville. The Dufferin County Council consists of 14 members from 8 area municipalities.

Maureen Coleman, president of the Carcinoid Neuroendocrine Tumor Society (CNETS) of CanadaLinda DeanDufferin’s Chief Administrative Officer; and Bev Claxton, Orangeville resident, were all present for the proclamation. Ms. Coleman, Ms. Claxton, and Ms. Dean are all NET patients. The Headwaters Health Care Centre in Orangeville be will the location for an event on November 5th to further promote NET cancer awareness and to acknowledge the professional staff who suspected a neuroendocrine tumor in a local patient.

For full article, go to Carcinoid’s Blog.

October 15

Governor of Missouri Proclaiming Worldwide NET Cancer Awareness Day

In recognition of the first Worldwide NET Cancer Awareness Day,Jeremiah W. (Jay) Nixon, Governor of Missouri, has declared November 10, 2010 to be Neuroendocrine Cancer Awareness Day.  In his proclamation, Governor Nixon talked about the importance of timely diagnosis and proper treatment to ensure that NET cancer patients have significantly improved outcomes and quality of life.

To reach and mobilize a global audience, the Worldwide NET Cancer Awareness Day campaign organizers have created an interactive website, www.netcancerday.org, which features a Proclamation that visitors are encouraged to digitally sign to show their support for the cause and the people they love. The site also includes information about neuroendocrine tumors, campaign news and photos and a calendar highlighting of events planned across the globe on or around November 10, 2010.

For full article, go to Carcinoid’s Blog.