April 25
2015

INCA recognized as an IRC sec. 501©(3) with public charity status

 

The International Neuroendocrine Cancer Alliance (INCA) is approved by the IRS.

 IRS 501c

The IRS recognized INCA as an IRC Sec. 501©(3).

 

INCA has received the IRS Determination letter. The IRS has approved the application for exemption and has recognized INCA as an IRC Sec. 501(c)(3) tax-exempt organization, with public charity status, effective May 1, 2013, the date of incorporation of the organization. Read more …

 

November 5
2014

View our NET Cancer Day newsletter

INCA news 14

To read our latest news for NET Cancer Day,  please click here…

 

 

November 3
2014

CNETS Canada Second Annual NET Cancer Awareness Day Breakfast

CNET BreakfastInvite2014

To mark international NET Cancer Awareness Day , CNETS Canada is holding  its second annual breakfast in Toronto, Ontario at the Arta Gallery in the Distillery District.   Patients, their families, friends, supporters, the medical community, industry representatives, politicians and bureaucrats from across Ontario will gather to learn more about the disease, treatments, research, and the health systems that support this patient community.

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November 3
2014

US governors show their support for NET Cancer Day

INCA-Proc.-Map_2014

The Carcinoid Cancer Foundation has contacted every Governor in the United States seeking proclamations and letters of support for NET Awareness Cancer Day 2014. As of October 29, thirty-eight (38) governors have recognized the importance of early detection and proper treatment leading to improved outcomes and a better quality of life for carcinoid/NET cancer patients!!  We anticipate even more proclamations in the days leading up to Worldwide NET Cancer Awareness Day!

November 3
2014

CFCF Launches Major Immunotherapy Initiative

The Caring for Carcinoid Foundation (CFCF) announce the launch of a major immunotherapy initiative.

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After a year of reviewing the research, consulting with experts, and engaging leading immunotherapy centers, CFCF is thrilled to announce the launch of a major immunotherapy initiative. A treatment that uses the body’s own immune system to fight cancer, immunotherapy has led to dramatic results for some patients with other forms of cancer. We are eager to test the potential of immune-based therapy to provide similar breakthroughs for patients with neuroendocrine cancers.

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November 3
2014

Results from first global survey of neuroendocrine tumor (NET) patients reveal profound impact of this rare cancer on quality of life

The International Neuroendocrine Cancer Alliance (INCA) and Novartis announced the quality-of-life results from the first global survey of patients with neuroendocrine tumors (NETs), a rare type of cancer1.

Global NET Survey-r11

Nearly 2,000 patients from 12 countries completed the survey, which was a collaborative effort between INCA and Novartis. The results were presented at a medical meeting and provide compelling data documenting the impact of NETs on people living with this disease1. These quality-of-life findings are the first in a series of results from the survey being released in conjunction with Worldwide NET Cancer Awareness Day (WNCAD), November 10. Read rest of article.

September 30
2014

“Le Sourire de Sabrina” brings Netty to France for NET Cancer Day

The first event in Restigné, at the heart of the Loire Valley in France

The day before the world NET cancer day
Zebras take the vineyard by storm!
Sunday November 9, 2014 – all day

logo-le-sourire-de-sabrina

Le Sourire de Sabrina” (Sabrina’s Smile) is a positive, cheerful association. It was founded in March 2014 to continue the fight of a young woman named Sabrina, who passed away in December 2013, after putting up an admirable fight against the most aggressive form of NET cancer: a poorly differentiated neuroendocrine tumor. She had just turned 33.

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September 20
2014

Unicorn Foundation employs first NET Nurse to run support services

The Unicorn Foundation has launched their first NET Cancer Nurse Specialist telephone and internet support for Australian (& New Zealand) patients.

Unicorn

Given the large geographical impediments for patients outside large metropolitan centres to get to our support groups, it was decided that the most effective way to service the needs of all NET patients was to have a ‘hotline’ staffed by an experienced NET nurse.

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September 19
2014

Seeing it from both sides…

This video, filmed by the UK’s NET Patient Foundation,  shows an interview with the remarkable Nancy Teixeira, who as both a NET patient and a NET nurse, has a unique perspective on the management of NETs.

To view the video, please click here…

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September 19
2014

Kids’ resources on Multiple Endocrine Neoplasia

Medikidz™ comics on multiple endocrine neoplasia types 1 and 2 (MEN1 and 2)

 medikidz

INCA member, the Association for Multiple Endocrine Neoplasia Disorders (AMEND) has sponsored the production of Medikidz™ comics on multiple endocrine neoplasia types 1 and 2 (MEN1 and 2). MEN disorders are inherited syndromes comprising more than one type of neuroendocrine tumour. Each child of an affected parent has a 1 in 2 chance of inheriting the condition. NETs occurring in MEN include those in the pancreas and phaoechromocytomas amongst others.

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