June 25

Why the Zebra?

Why is the zebra associated with NET Cancer?

Why the zebra

In medicine, the term “zebra” is used in reference to a rare disease or condition, like Neuroendocrine (NET) Cancers.

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June 19

Netty and her caregivers

In our first stripe in the third season with Netty, we are focusing on caregivers.

1-S3_epizode_June 2 liten


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April 25

INCA recognized as an IRC sec. 501©(3) with public charity status


The International Neuroendocrine Cancer Alliance (INCA) is approved by the IRS.

 IRS 501c

The IRS recognized INCA as an IRC Sec. 501©(3).


INCA has received the IRS Determination letter. The IRS has approved the application for exemption and has recognized INCA as an IRC Sec. 501(c)(3) tax-exempt organization, with public charity status, effective May 1, 2013, the date of incorporation of the organization. Read more …


November 5

View our NET Cancer Day newsletter

INCA news 14

To read our latest news for NET Cancer Day,  please click here…



November 3

CNETS Canada Second Annual NET Cancer Awareness Day Breakfast

CNET BreakfastInvite2014

To mark international NET Cancer Awareness Day , CNETS Canada is holding  its second annual breakfast in Toronto, Ontario at the Arta Gallery in the Distillery District.   Patients, their families, friends, supporters, the medical community, industry representatives, politicians and bureaucrats from across Ontario will gather to learn more about the disease, treatments, research, and the health systems that support this patient community.

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November 3

US governors show their support for NET Cancer Day


The Carcinoid Cancer Foundation has contacted every Governor in the United States seeking proclamations and letters of support for NET Awareness Cancer Day 2014. As of October 29, thirty-eight (38) governors have recognized the importance of early detection and proper treatment leading to improved outcomes and a better quality of life for carcinoid/NET cancer patients!!  We anticipate even more proclamations in the days leading up to Worldwide NET Cancer Awareness Day!

November 3

CFCF Launches Major Immunotherapy Initiative

The Caring for Carcinoid Foundation (CFCF) announce the launch of a major immunotherapy initiative.


After a year of reviewing the research, consulting with experts, and engaging leading immunotherapy centers, CFCF is thrilled to announce the launch of a major immunotherapy initiative. A treatment that uses the body’s own immune system to fight cancer, immunotherapy has led to dramatic results for some patients with other forms of cancer. We are eager to test the potential of immune-based therapy to provide similar breakthroughs for patients with neuroendocrine cancers.

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November 3

Results from first global survey of neuroendocrine tumor (NET) patients reveal profound impact of this rare cancer on quality of life

The International Neuroendocrine Cancer Alliance (INCA) and Novartis announced the quality-of-life results from the first global survey of patients with neuroendocrine tumors (NETs), a rare type of cancer1.

Global NET Survey-r11

Nearly 2,000 patients from 12 countries completed the survey, which was a collaborative effort between INCA and Novartis. The results were presented at a medical meeting and provide compelling data documenting the impact of NETs on people living with this disease1. These quality-of-life findings are the first in a series of results from the survey being released in conjunction with Worldwide NET Cancer Awareness Day (WNCAD), November 10. Read rest of article.

October 24

Netty raising awareness for NET Cancer

Our first season with Netty, the NET Cancer Day zebra.
Here we are presenting the four stripes for season 1.

Zebra cartoon



September 30

“Le Sourire de Sabrina” brings Netty to France for NET Cancer Day

The first event in Restigné, at the heart of the Loire Valley in France

The day before the world NET cancer day
Zebras take the vineyard by storm!
Sunday November 9, 2014 – all day


Le Sourire de Sabrina” (Sabrina’s Smile) is a positive, cheerful association. It was founded in March 2014 to continue the fight of a young woman named Sabrina, who passed away in December 2013, after putting up an admirable fight against the most aggressive form of NET cancer: a poorly differentiated neuroendocrine tumor. She had just turned 33.

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