February 19
2014

First Global NET Patient Survey

As part of  the International Neuroendocrine Cancer Alliance’s mission to raise awareness of NET cancer among the healthcare community as well as the general public, we are pleased to announce the launch of the first ever Global NET Patient Survey! Read rest of article.

January 22
2014

Carcinoid NeuroEndocrine Tumour Society of Canada Partners with Cancer Research Society to Fund Neuroendocrine Tumor Research

The Canadian Cancer Research Society, in partnership with CNETS Canada, is awarding $120,000 to Dr. Nahum Sonenberg and his team of researchers from McGill University to pursue new ways to treat pancreatic neuroendocrine tumors, the second most common type of cancer affecting the pancreas. Read rest of article

December 13
2013

$1 Million Challenge Grant Awarded to Caring for Carcinoid Foundation

The Caring for Carcinoid Foundation (CFCF) in the United States has received an extraordinary $1 million challenge grant from the Goldhirsh-Yellin Foundation. This challenge is designed to accelerate and expand a promising and exciting research portfolio, with the goal of new treatments and an eventual cure for carcinoid and other neuroendocrine tumors (NET). Read rest of article.

December 13
2013

CNETS Canada Launches NET Patient Education Handbook

The Carcinoid NeuroEndocrine Tumour Society Canada has launched the first comprehensive Canadian NET cancer patient and caregiver education handbook in interactive soft copy format. This handbook is the result of many months of work and is a valuable source of information not only for patients but also for caregivers, health care providers, politicians, civil servants, funders and the general public to inform them on this uncommon, often undiagnosed or misdiagnosed form of cancer. Read rest of article.

December 13
2013

42 United States Governors Support NET Cancer Awareness Day

The Carcinoid Cancer Foundation reported that forty-two U.S. Governors issued proclamations and letters of support for the 4th annual NET Cancer Awareness Day on November 10, 2013. This marks a record in the four-year history of the worldwide awareness day! Read rest of article.

December 12
2013

News from Australia

The South Australian Cancer Pathway for Gastroenteropancreatic NETs Launched on November 13th at Major Oncology Meeting in Australia (COSA ASM). The Unicorn Foundation is proud to announce the launch of the South Australian Gastroenteropancreatic NETs (SA GEP NET) Cancer Pathway during the Clinical Oncology Society meeting by the Hon Jack Snelling MP, South Australian Minister for Health and Aging. Read rest of article.

November 9
2013

NET Cancer Day Webinar Features Three Leading Carcinoid/NET Specialists

In recognition of Worldwide NET Cancer Awareness Day on November 10, NorCal CarciNet is hosting a one-hour, free webinar. Here’s a great opportunity to hear from 3 of the leading specialists in carcinoid/NET cancer treatment on NET CANCER DAY: Professor Dr. Richard P. Baum, Bad Berka, Germany; Dr. Eric Liu, Vanderbilt University, Tennessee; and Dr. Thomas O’Dorisio, University of Iowa. The webinar will be moderated by Josh Mailman, President of NorCal CarciNET and Chair of Patient Advocacy for the Society of Nuclear Medicine, and Bill Claxton, founder of CNETS Singapore. Read rest of article.

November 9
2013

Remembering Agneta H-Franzen

It is with deep sadness that INCA has learned of the passing of Agneta H-Franzen, Chairperson of Carpa, the Swedish NET patient organization, and a founding member of the International Neuroendocrine Cancer Alliance.  Agneta was a passionate advocate for carcinoid/neuroendocrine cancer patients in Sweden and around the world. Read rest of article.

September 10
2013

Remembering Maureen Coleman

On August 31, 2013, the carcinoid/neuroendocrine tumor (NET) community throughout the world lost one of its most passionate advocates, Maureen Coleman, Founding Past President of CNETS Canada and a founding member of the International Neuroendocrine Cancer Alliance (INCA). Read rest of article.

July 29
2013

Global Advocate for Neuroendocrine Cancer Patients Announces New Name — International Neuroendocrine Cancer Alliance (INCA)

The International Neuroendocrine Cancer Alliance (INCA) announced its new name, the official one to be used by the organization, which has committed to being the global advocate for neuroendocrine cancer patients. Envisioning a world where all neuroendocrine cancer patients get a timely diagnosis, the best care and ultimately a cure, INCA (formerly known as the Worldwide NET Cancer Awareness Day Alliance) was established in 2010 in Berlin, Germany. Read rest of article.