Raising awareness of neuroendocrine cancers around the world

A meeting for anyone with an interest in NET cancers.

A meeting for anyone with an interest in NET cancers.

A meeting for anyone with an interest in NET cancers.

A meeting for anyone with an interest in NET cancers.

The NET Patient Foundation is holding a patient education meeting at Aintree Racecourse on Saturday 26th May between 1 – 4 pm. This will be a great opportunity to hear from some of the top specialists in the world of NETs and to ask them any questions you may have. It’s also a chance to meet other NET patients living in your area. Speakers include Dr Juan Valle, Prof Graeme Poston, and Prof Vinjamuri.

PLANETS is a new charity based at Southampton General Hospital, dedicated to defeating Pancreas Liver And Neuroendocrine Tumours (NETs). At PLANETS we raise money to help the Hospital provide world-class care for patients in supporting the hospital’s pioneering work in treatment, research and education of these difficult and complex cancers.
The long awaited 1st PLANETS NET patient day will take place at Chilworth Manor Hotel just outside Southampton on Monday 16th July 2012.
Full programme details will follow very shortly once all speakers and topics have been confirmed.
This will be a great opportunity for patients to get together as well as having talks from some of the most influential consultants in the field of NETS.
The event will run all day and include refreshments and lunch – all at no cost !
Spaces are limited so it will be strictly on a first come first served basis.

We are delighted to be able to announce that we will be holding a special Patient Event to mark the third global NET Cancer Day on Saturday 10th November. We will be inviting patients and their carers, and some of the UK’s top experts in the field of neuroendocrine cancers, to share information and experience in the beautiful surroundings of Ascot Racecourse.

Special theme: lung-NET and lung-NEC (grade 1,2,3)

10.30 – 11.00 Start with coffee / tea
11.00 – 13.00 Lectures and coffee break
• Dr. Wieneke Buikhuisen, thoraxoncologist, Netherlands Cancer Institute- AVL, Holland
• Liesbeth Lemmens, nurse practitioner, University Hospital Leuven, Belgium
• Sophie Bunskoek, nurse practitionar, University Medical Centre Groningen, Holland
13.00 – 14.00 Lunch
14.00 – 15.15 Panel with professionals,  plenary addressed questions about NET
15.15 – 16.15 Speed dating with doctors, nurses and social workers
16.15 – 17.00 Final round with drinks and snacks

Who is on the panel and available for speed-dating
-the people of the morning program
-Dr. Karen Geboes, UZ Gent gastroenterologist
-A nurse specialist from the PRRT team of the Erasmus Medical Center, Rotterdam
-Kathleen Schiepers,  psychologist of the Foundation against Cancer, Belgium
-Mrs. Chris Heremans, Head of Social Service Flemish League against Cancer,
-Doctors from the pharmaceutical industry; Ipsen, Novartis and Pfizer
-Physiotherapist, Humbert Buur, Healthy South, Amsterdam

A live stream will be set up. People can follow the meeting behind their personal computer at home or in the hospital.  Also for the livestream pre-registration is required.

Key societies dealing with neuroendocrine liver metastases (NET-Liver-Mets) are organising a state of the art international consensus conference to be held in London, UK, 12-13 December, 2012. Over 300 experts are expected to attend this landmark conference with the aim to provide internationally accepted statements on the management of Neuroendocrine Liver Metastases.
The organisation of this Consensus Conference will follow the concept of the Danish model. The hot topics are extensively discussed and reviewed well in advance by working groups of key people, named expert panels. These panels of experts involve surgeons, gastroenterologists, radiologists, pathologists, patient associations, methodologists, and ethicists. A panel of non-NET specialists, the Jury, will assess the controversial developments regarding expert insights and will produce statements at the end of the conference. The summary of the conference is expected to be published in a high impact factor journal.

The NET Patient Foundation’s Cathy Bouvier will be sitting on the Jury.