NET Cancer Day
Nov 3 2014
To mark international NET Cancer Awareness Day , CNETS Canada is holding its second annual breakfast in Toronto, Ontario at the Arta Gallery in the Distillery District. Patients, their families, friends, supporters, the medical community, industry representatives, politicians and bureaucrats from across Ontario will gather to learn more about the disease, treatments, research, and the health systems that support this patient community.
Jackie Herman, the President of CNETS Canada and a NET patient herself, will present information about the education and awareness that CNETS Canada provides, not only to patients and their support system but also to the medical community and Canadian policy makers. She will remind Canadians that the incidence of this disease in Canada is on the rise and that it can take up to seven years for Canadians to be diagnosed from the time they first see a doctor with symptoms. High level results from the INCA/Novartis NET patient survey will be shared with attendees of the breakfast. Jackie will also share greetings to the organization and NETs community from several Canadian politicians.
Dr. Shereen Ezzat, a world renowned endocrine oncologist from the University Health Network’s Princess Margaret Hospital in Toronto, will present about the symptoms and diagnosis of this disease as well as about treatments and research being done in this area.
Mona Sabharwal, Executive Director of the well-respected pan-Canadian Oncology Drug Review (pCODR) , a programme of the Coordinating Agency for Drugs and Technologies for Health will also present. This body provides the health technology assessment for oncology drugs including cancer drugs for NETs. This review process is used by provincial/territorial governments to decide whether to reimburse eligible Canadians for their medications. Mona will talk about making safe and effective treatments available to patients and doing a comprehensive review, including seeking the advice of oncologists who work specifically in the cancer field and patients who have actually had experience with the drugs under consideration.
CNETS Canada is expecting a good turnout to this now annual event and attendees will enjoy a complimentary breakfast throughout the session.
In addition to this event, CNETS Canada is promoting participation in the NET Cancer Day Selfie initiative among its membership and Facebook and Twitter followers.