United States

Carcinoid Cancer Awareness Network

CCAN INC is a non-profit charity whose mission is to intensify awareness of Carcinoid/NET Cancer in the medical community and general public around the world. CCAN also assists patients, caregivers & support groups worldwide. We provide access to important & updated information. Since 2004 CCAN has produced 19 conferences. Many are available to view on our website. DVD’s & CD ROMS are also available. Our toll free phone support line is answered by a patient or a caregiver 7 days a week.

Carcinoid Cancer Awareness Network


The Carcinoid Cancer Foundation

Founded in 1968, the Carcinoid Cancer Foundation is the oldest foundation of its kind in the U.S. CCF’s mission is to create greater awareness and education of carcinoid/NETS within the general public and medical communities, to support patients and their families, and to serve as patient advocates for all with these rare cancers. Over 1,060,000 people have visited CCF’s website, a premiere resource for up-to-date, comprehensive information on NET cancers. Carcinoid specialist Richard R.P. Warner, MD, is CCF’s Medical Director.

Toll-free telephone:  1-888-722-3132

Email:  carcinoid@carcinoid.org

Carcinoid Cancer Foundation


Caring for Carcinoid Foundation

The mission of the Caring for Carcinoid Foundation (CFCF) is to discover a cure for carcinoid cancer and related neuroendocrine tumors. CFCF funds leading scientists, whose research will advance the understanding of neuroendocrine tumors, with the goal of curing these diseases. Along with its focus on research, CFCF is committed to supporting patients, families, friends, and caregivers by providing them with complete and up-to-date information.

Caring for Carcinoid Foundation


Carcinoid CARES

To give Patients, Medical Professionals, Caregivers, and Friends with Carcinoid NET Tumors and any other type of cancer a place to go for Cancer Awareness Resources Education and Support.

Email: admin@carcinoidcares.org


The Lois Merrill Foundation

The Lois Merrill Foundation (LMF) is a non-profit organization founded in 2007 in honor of Lois Merrill. Lois was a devoted wife, mother and school teacher whose passion for life and sincere desire to help others lives on through The LMF. The mission of the LMF is to help people affected by carcinoid cancer through funding research for new treatments, providing financial support for patients and their families, and promoting awareness and education for carcinoid and other rare cancers.

Lois Merrill Foundation


North American Neuroendocrine Tumor Society (NANETS)

The North American Neuroendocrine Tumor Society is a non-profit organization established by a group of physicians dedicated to improving neuroendocrine tumor (NET) disease management. Through various educational and research programs, NANETS is developing the next generation of clinicians and researchers in the field. It was established on September 26, 2006 in Portland, Oregon.

North American Neuroendocrine Tumor Society


Pancreatic Cancer Action Network

The Pancreatic Cancer Action Network is a nationwide network of people dedicated to working together to advance research, support patients and create hope for those affected by pancreatic cancer.

Pancreatic Cancer Action Network


NJ Carcinoid Cancer Network

We are the New Jersey group of NET patient and caregivers. Our purpose is to offer support and education to the NET patients, caregivers and medical professionals. Our aim is to promote awareness and to work towards better diagnosis, treatment and possible cures for this disease.


Pheo Para Troopers

The mission of the Pheo Para Troopers is to empower and support patients with pheochromocytoma and paraganglioma through knowledge, a sense of community and advocacy, while sponsoring key initiatives in data collection, treatment and patient care.

Pheo Para Troopers Logo


The Patients Project

Addressing the problem of health literacy in disadvantaged communities based on curricula based on acquired NET patient skills and their lives tending to a chronic disease with no cure. Founder is a carcinoid patient. We also run a NET support group and create collateral for the community at large.

The Patients Project Logo


Walking with Jane

Walking With Jane is dedicated to killing the cancer that took Jane Dybowski from us far too soon. Our goal is to provide one-stop access to the latest information about Neuroendocrine Cancer, Neuroendocrine Tumors and Carcinoid Syndrome research, treatment, and events in support of patients, caregivers, physicians, and research and charitable efforts.

Email: walkingwithjane@gmail.com