Raising awareness of neuroendocrine cancers around the world

United States

Carcinoid Cancer Awareness Network

CCAN INC is a non-profit charity whose mission is to intensify awareness of Carcinoid/NET Cancer in the medical community and general public around the world. CCAN also assists patients, caregivers & support groups worldwide. We provide access to important & updated information. Since 2004 CCAN has produced 19 conferences. Many are available to view on our website. DVD’s & CD ROMS are also available. Our toll free phone support line is answered by a patient or a caregiver 7 days a week.

The Carcinoid Cancer Foundation

Founded in 1968, the Carcinoid Cancer Foundation is the oldest foundation of its kind in the U.S. CCF’s mission is to create greater awareness and education of carcinoid/NETS within the general public and medical communities, to support patients and their families, and to serve as patient advocates for all with these rare cancers. Over 1,060,000 people have visited CCF’s website, a premiere resource for up-to-date, comprehensive information on NET cancers. Carcinoid specialist Richard R.P. Warner, MD, is CCF’s Medical Director.

www.carcinoid.org

Toll-free telephone:  1-888-722-3132

Email:  carcinoid@carcinoid.org

Caring for Carcinoid Foundation

The mission of the Caring for Carcinoid Foundation (CFCF) is to discover a cure for carcinoid cancer and related neuroendocrine tumors. CFCF funds leading scientists, whose research will advance the understanding of neuroendocrine tumors, with the goal of curing these diseases. Along with its focus on research, CFCF is committed to supporting patients, families, friends, and caregivers by providing them with complete and up-to-date information.

The Lois Merrill Foundation

The Lois Merrill Foundation (LMF) is a non-profit organization founded in 2007 in honor of Lois Merrill. Lois was a devoted wife, mother and school teacher whose passion for life and sincere desire to help others lives on through The LMF. The mission of the LMF is to help people affected by carcinoid cancer through funding research for new treatments, providing financial support for patients and their families, and promoting awareness and education for carcinoid and other rare cancers.

North American Neuroendocrine Tumor Society (NANETS)

The North American Neuroendocrine Tumor Society is a non-profit organization established by a group of physicians dedicated to improving neuroendocrine tumor (NET) disease management. Through various educational and research programs, NANETS is developing the next generation of clinicians and researchers in the field. It was established on September 26, 2006 in Portland, Oregon.

Pancreatic Cancer Action Network

The Pancreatic Cancer Action Network is a nationwide network of people dedicated to working together to advance research, support patients and create hope for those affected by pancreatic cancer.

NJ Carcinoid Cancer Network

We are the New Jersey group of NET patient and caregivers. Our purpose is to offer support and education to the NET patients, caregivers and medical professionals. Our aim is to promote awareness and to work towards better diagnosis, treatment and possible cures for this disease.

Pheo Para Troopers

The mission of the Pheo Para Troopers is to empower and support patients with pheochromocytoma and paraganglioma through knowledge, a sense of community and advocacy, while sponsoring key initiatives in data collection, treatment and patient care.

The Patients Project

Addressing the problem of health literacy in disadvantaged communities based on curricula based on acquired NET patient skills and their lives tending to a chronic disease with no cure. Founder is a carcinoid patient. We also run a NET support group and create collateral for the community at large.